Hi, I am Terre. My reason for being here is my daughter Kristina who is 14 years old and was born with the genetic syndrome of Trisomy 18. We were told at the time she was diagnosed that it was likely she would not even survive to birth and if she did, she would certainly die soon after. We have been blessed and the heartbreaking prognosis did not become our reality. Sadly, not all families are so fortunate. Many have the heart wrenching experience of saying goodbye far too soon. And other’s, whose children do survive are left fending for themselves in a world that often overlooks the incredible affect and legacy that these children bring to the world.
Every child’s life matters regardless of how much time they have to spend on this spinning planet we call Earth. They each carry with them a message of hope, a message of courage and most of all they bring love. A love that will forever change the lives of all who hear their story.
TrisomyTalk.com was launched a couple of years ago with the sole purpose of supporting and promoting the joy and beauty of children (and adults!) with a Trisomy diagnosis. Our intention is to spotlight our beautiful joyous children and provide you, the parents, family and providers of these kids, with information and ideas that will help you, your child and your family on your Trisomy Journey, where ever it may take you.
If you are newly diagnosed we will help you get through the scary times, if you’re a seasoned parent we’ll help you be ready for the next stages of your child’s development. Together the Trisomy Roller Coaster doesn’t seem quite so crazy!
Our webinar series will begin again soon. Watch for an updated schedule to be posted very soon with live online webinars relevant to your life and journey with your very rare and unique child. To stay up to date please subscribe to our mailing list.
Help us bring you the information that you need most by completing our survey. This is your chance to help determine what some of those topics will be and to speak up and ask for the information you need! Click here to complete the survey and let us know how we can help you!