Author Archives: Terre Krotzer

Lilly’s (Little Firecracker!) Mom Celebrates Lilly’s Birthday with Thirty One Gifts Fundraiser

“For July – in memory of what would have been my Lilly’s 3rd b’day on July 4 – I’m hosting a “Thirty One” fundraiser for SOFT and my Lilly Projects! See this blog post for details.” Pray For Lilly: My Thirty One gifts fundraiser for SOFT and The Lilly Memorial Projecthttp://pray4lilly.blogspot.com/2013/07/my-thirty-one-gifts-fundraiser-for-soft.htmlUPDATE:  Thirty-One link is corrected…Continue Reading

Fashion photographer focuses on those with genetic conditions to reframe beauty

Fashion photographer focuses on those with genetic conditions to reframe beauty

This segment ran on NBC’s Rock Center June 7, 2013. Rick Guidotti, the photographer in this feature was at the 2007 SOFT (Support Organization for Trisomy) Conference in Utah. We were one of two families that successfully bid for a family photo shoot. The shoot was done at the picnic. The photos he took of…Continue Reading

Trisomy 18 – Living Children Family Blogs!

Giuliana’s Gift of Life ~A Trisomy 18 Blog~http://g-giftoflife.blogspot.com/Giuliana lives with trisomy 18(Edwards Syndrome),a genetic condition meaning she has three copies of the 18th chromosome instead of two.Giuliana is using her life to dispute what… Compatible With Joy-Trisomy18http://compatiblewithjoy-trisomy18.blogspot.com/In medical literature, babies with Trisomy 18 are “incompatible with life.” Our precious son, Aaron, is defying the odds…Continue Reading

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