Common Anomalies in Trisomy 18 and Trisomy 13 Children!

Let's Talk Trisomy! Common Anomalies in Trisomy 18 and Trisomy 13 Children

As parents of Trisomy children we are all too familiar with the “standard Trisomy line”, incompatible with life. We know that this, among many other common “truths” about Trisomy are simply “possibilities” and that only time will reveal a child’s path and destiny. Over the next few weeks we’re going to have a conversation about…Continue Reading

Welcome to Holland

Welcome to Holland

Written by Emily Perl Kingsley (in 1987) I am often asked to describe the experience of raising a child with disability – to try to help people who have not shared that unique experience to imagine how it would feel. It is like this…When you’re going to have a baby, it is like planning a fabulous…Continue Reading

Akaiya

Akaiya

Akaiya Jacelyn Full Trisomy 18 10 1/2 years old! Mom: Kelly Tinley Park, IL “Akaiya meets all of her challenges with a loud yell and a grin, so we can’t help but do the same!” Akaiya was born on a Wednesday, by emergency c-section, at a little hospital in Chicago. We were not aware of…Continue Reading

William

William

William Christoffer Full Trisomy 18 Lived for half an hour Mom: Lill-Heidi Lofoten, Norway It was in the 24th week my pregnancy that the doctor found out that something wrong with our little one. We took a test of the amniotic fluid which showed he had full Trisomy 18. Our baby boy was born in…Continue Reading

Giuliana

Giuliana

Meet Giuliana, the definition of pure perfection! Giuliana was diagnosed after birth with full trisomy 18 based on outward markers, classic cardiac defects associated with the syndrome(not prenatally detected via utlrasound-VSD, ASD, PDA) and blood work. Giuliana had her heart fully repaired at only 6 lbs 13 oz and 2.5 months old and because of…Continue Reading

Brandon

Brandon

Brandon 16 years old Mosaic Trisomy 18 Mom: Gloria Edmonton, Alberta, Canada “He is an amazing son, compassionate friend, and a trusting child of God.” My name is Gloria, and I am the mother of Brandon, a young man with a heart of gold. He is a fabulous teenager and enjoys many activities such as acting, reading,…Continue Reading

FEAR – Faulty Evidence Appearing Real

FEAR – Faulty Evidence Appearing Real

This article by Andrew Solomon appeared last week in the New Yorker: In this article Andrew talks about the recent North Dakota abortion bill and its limitations on “selective abortion.” Pointing out that parents are asked to make these decisions without complete information. MEDICAL PROGRESS, SOCIAL PROGRESS, AND LEGAL REGRESSION http://www.newyorker.com/online/blogs/newsdesk/2013/04/north-dakota-abortion-bill-politics-disabilities-health.html I do not believe that…Continue Reading

Emerson

Emerson

Emerson 19 months old Partial Trisomy 18 Parents: Tyson and Terra Garst Omaha, NE Emerson was diagnosed with Partial Trisomy 18q at 17 weeks gestation due to family history of a translocation as well as “soft” signs found on ultrasound (club foot and nuchal fold thickening). Emerson was induced at 40 weeks 2 days and immediately admitted to…Continue Reading

Appearing This Weekend for One Show Only… The 2013 Good Samaritan Foundation CTU’s “Celebration of Our Stars!”

Appearing This Weekend for One Show Only… The 2013 Good Samaritan Foundation CTU’s “Celebration of Our Stars!”

This Saturday, April 20th, Kristina, along with many other friends of the Good Samaritan Foundation Children’s Therapy Unit, will be appearing on stage at Emerald Ridge High School in Puyallup to showcase their new found talents and emerging skills. They are going to show us how they have grown and developed through the various therapy…Continue Reading

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