Power Pudding

Power Pudding

This is our modified version of a recipe that was given to me a couple years ago by a nurse that was at our house to do a skin assessment on Krissy. You just never know where good ideas are going to come from! Immediately Krissy went from a “once a week if left to…Continue Reading

How Your Story Helps Others

How Your Story Helps Others

Tribute pages are going up… share your story today! Ideas to help you get started: It doesn’t have to be perfect, just share the part of your story that you feel inspired to share right now – you can add to it or change it later. Start with the basic facts and then focus on…Continue Reading

Ripples in the Pond

Ripples in the Pond

Ripples in the pond… What have you or someone you know been inspired to do or create as a direct result of your life path experience with your Trisomy child? This is where we will be spotlighting our Trisomy Ripples: projects, events, and simply good things that families and friends have been inspired to do…Continue Reading

Let it Be

http://www.huffingtonpost.com/christi-guthrie/gratitude_b_2814040.html   What a great example of “Choosing to Do Life.” While the obvious topic here is choosing to carry or not to carry a child with a known birth defect, disability or “incompatible with life” diagnosis to term it goes far beyond that. This great article dares to address the possibility that we may…Continue Reading

Registry of Surgeries Performed on Trisomy Children – One of many Resources SOFT Provides!

Did you know that your membership with SOFT benefits more than just you? Its true! SOFT maintains a registry of surgeries performed on children with a Trisomy reported by parents on their membership forms. This information can sometimes help other families find doctors. The registry is also a resource for studies which help doctors learn…Continue Reading

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