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Akaiya

Akaiya

Akaiya Jacelyn Full Trisomy 18 10 1/2 years old! Mom: Kelly Tinley Park, IL “Akaiya meets all of her challenges with a loud yell and a grin, so we can’t help but do the same!” Akaiya was born on a Wednesday, by emergency c-section, at a little hospital in Chicago. We were not aware of…Continue Reading

William

William

William Christoffer Full Trisomy 18 Lived for half an hour Mom: Lill-Heidi Lofoten, Norway It was in the 24th week my pregnancy that the doctor found out that something wrong with our little one. We took a test of the amniotic fluid which showed he had full Trisomy 18. Our baby boy was born in…Continue Reading

Giuliana

Giuliana

Meet Giuliana, the definition of pure perfection! Giuliana was diagnosed after birth with full trisomy 18 based on outward markers, classic cardiac defects associated with the syndrome(not prenatally detected via utlrasound-VSD, ASD, PDA) and blood work. Giuliana had her heart fully repaired at only 6 lbs 13 oz and 2.5 months old and because of…Continue Reading

Brandon

Brandon

Brandon 16 years old Mosaic Trisomy 18 Mom: Gloria Edmonton, Alberta, Canada “He is an amazing son, compassionate friend, and a trusting child of God.” My name is Gloria, and I am the mother of Brandon, a young man with a heart of gold. He is a fabulous teenager and enjoys many activities such as acting, reading,…Continue Reading

Emerson

Emerson

Emerson 19 months old Partial Trisomy 18 Parents: Tyson and Terra Garst Omaha, NE Emerson was diagnosed with Partial Trisomy 18q at 17 weeks gestation due to family history of a translocation as well as “soft” signs found on ultrasound (club foot and nuchal fold thickening). Emerson was induced at 40 weeks 2 days and immediately admitted to…Continue Reading

Kristina Rachel

Kristina Rachel

  Our daughter Kristina was born with the rare condition known as Trisomy 18 or Edward’s Syndrome. In simple terms this means that Krissy has three number 18 chromosomes. Sadly, many babies with this syndrome do not survive to birth. Of those that survive only about 10% of them live to celebrate their first birthday.…Continue Reading

Krissy’s Story, the story of a beautiful girl beating the odds and Living with Trisomy 18!

Our daughter Kristina was born with the rare condition known as Trisomy 18 or Edward’s Syndrome. In simple terms this means that Krissy has three number 18 chromosomes. Sadly, many babies with this syndrome do not survive to birth. Of those that survive only about 10% of them live to celebrate their first birthday. Krissy…Continue Reading

I Am Not a Syndrome – My Name is Simon!

I Am Not a Syndrome – My Name is Simon!

TrisomyTalk.com welcomes Trisomy mom Sheryl Crosier, author of “I Am Not a Syndrome, My Name is Simon.” Join us as Sheryl shares her family’s Trisomy Journey with her son Simon who was diagnosed at birth with Trisomy 18, also known as Edward’s Syndrome. She will introduce us to her incredible son Simon, share with us…Continue Reading