Welcome to the Jump4Trisomy Awareness Challenge

Welcome to the Jump4Trisomy Awareness Challenge

Welcome to the Jump4Trisomy Awareness Challenge!

Why did we choose jumping for our awareness challenge?

We wanted an activity that is easily adaptable for any age or ability. Jumping Jacks inspired us…they can be done sitting, standing, or laying. Modifications such as just using arms or legs can be made while still completing the challenge. We want as many people to be able to participate. Best of all, we all have the ability to either move or have someone help us move!

Be Inspired and Be Creative – jumping jacks, jump rope, jump on a trampoline… Our wish list includes getting a group of skydivers to Jump4Trisomy!

When you have created your Jump4Trisomy video please share it to the Jump4Trisomy Facebook page.

SOFT (Support Organization for Trisomy) will be doing a drawing for weekly giveaways, your Jump4Trisomy video qualifies you for the drawing. Once you have created and uploaded your video
 
 
Enter Jump4Trisomy Drawing
 
 
Please keep the challenges coming and help us continue to raise #trisomyawareness as we #Jump4Trisomy!

Donations are not required in order to particpate however if you would like to make a donation you can do so here: Donate to Jump4Trisomy

More on Trisomy Awareness can be found on our Trisomy Awareness Facebook Page.

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How to Jump4Trisomy

The Jump4Trisomy Awareness Challenge is designed to raise awareness of Trisomy and in doing so educate and inform. Be creative in your Jump4Trisomy and when you video is posted we ask that you follow these instructions. If we can be United in our message we will have a greater chance of being heard!

United we stand Trisomy Strong!

How to Jump4Trisomy:

Step 1. Make a video of any form of jumping you can do!

Step 2. Post your video along with the following information:

We are participating in the ‪#‎jump4trisomy‬ Awareness Challenge to help raise ‪#‎trisomyawareness‬ !

*I/7,000 live births in the USA have trisomy 18 and 1 /10,000 have trisomy 13

*About 5-8% of infants with trisomy 18 and 13 survive to one year, often without extraordinary measures.
Once a child is greater than a year, there is a 60% chance to live beyond 5 years.

*Cardiac defects are present in 90% of those born with trisomy 18 and 80% with trisomy 13; studies from Canada, the USA and Japan show approximately 90% were discharged to home following a cardiac repair.

Survivors:

*Early intervention, Special Education and therapies benefit these children and they do slowly achieve some milestones.

*SOFT has supported families of Trisomy 18, 13 and all related disorders for 35 years.

*The oldest adult known to Soft with Full Trisomy 18 lived 38 years, Full Trisomy 13 lived 35 years, and Trisomy 9p is 45.

*There are approximately 250 individuals older than age one living with Trisomy 18 and Trisomy 13 in the US.

*Physician support in all stages of decision making is vital to parents for a successful partnership.

*Families desire medical provider’s understanding that every child is a valued member of their family and not simply a syndrome.

*Create a positive working partnership between families and physicians by avoiding phrases such as Incompatible with Life or Lethal Diagnosis.

*Online support groups are vital to connect families, access knowledge and lessen feelings of isolation.

Jump4Trisomy Awareness FB page:
https://www.facebook.com/jump4trisomy

SOFT Facebook page:
https://www.facebook.com/Trisomy18.Trisomy13.Awareness.SOFT…

Trisomy Awareness Facebook page:https://www.facebook.com/TrisomyAwareness.SOFT

For support with a trisomy diagnosis or to make a donation go to www.trisomy.org

Step 3. Challenge others to Jump4Trisomy and help us raise awareness!
Be sure to post your video to the Jump4Trisomy page!

Step 4. Click this button and enter the Jump4Trisomy Awareness Challenge weekly drawing.

 

Enter Jump4Trisomy Drawing