Our daughter Kristina was born with the rare condition known as Trisomy 18 or Edward’s Syndrome. In simple terms this means that Krissy has three number 18 chromosomes. Sadly, many babies with this syndrome do not survive to birth. Of those that survive only about 10% of them live to celebrate their first birthday. Krissy will turn 13 in March! This is her story…
Krissy was born March 25, 2000 at Tacoma General Hospital in Tacoma, WA. She weighed 3lb 10oz. After spending several hours getting to know her family she was taken to the Intermediate Care nursery for monitoring and evaluation. They weren’t really sure what to do because they were expecting her to die and this tiny child was all about life and living! They placed an NG tube to make certain she was getting enough to eat but aside from that and being very tiny she was not really different from any other newborn. They kept her in the Intermediate Care nursery for a couple days and then she was moved into the room with Mom.
At five days old she went home. There was nothing she needed that we couldn’t do at home and we knew that at home she would be surrounded by the love and energy of people who believed in Krissy and in her possibilities!
What can I say? The girl has always had an attitude and so far it has served her well!!!
Clearly this is just an introduction. There is certainly much more to Krissy’s Story and we’ll be sharing some of the many twists and turns and especially the blessings of our Trisomy Journey in our blog! Stay tuned!