Registry of Surgeries Performed on Trisomy Children – One of many Resources SOFT Provides!

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Did you know that your membership with SOFT benefits more than just you?
Its true!

SOFT maintains a registry of surgeries performed on children with a Trisomy reported by parents on their membership forms. This information can sometimes help other families find doctors. The registry is also a resource for studies which help doctors learn about our children. A cardiac surgery study is planned for the near future and an ENT surgery study too. Remember, even if you are a member of the SOFT face book page, the Facebook page is not the SOFT website. Your SOFT membership is FREE!

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Click here to share your story on TrisomyTalk!

2 Responses to Registry of Surgeries Performed on Trisomy Children – One of many Resources SOFT Provides!

  1. In addition to these 3 published articles in scientific medical journals, the SOFT Registry has collected cases throughout North America of children with trisomy 18 or 13 who have had cardiac surgery since 1990.

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