This is a replay of a webinar aired on Februay 27, 2013 11:00 am – 11:45 am
Dr. Debbie Bruns discusses the TRIS Project.
What it is, why it is and how much your input matters!
Debbie Bruns is the Principal Investigator of the Tracking Rare Incidence Syndromes (TRIS) project. Since the project began in February 2007, approximately 500 families from around the world have enrolled with over 70% completing one or more surveys. Resulting data is compiled, analyzed and disseminated via conference presentations and publications. The data has reached clinical geneticists, neonatal nurses and early intervention (working with infants and toddlers with disabilities or developmental delays) professionals.